DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.

Our vision:
We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB.

DEBRA focuses its work in two areas:

  • We fund pioneering research to find effective treatments and, ultimately, a cure for EB.
  • We provide care and support to improve the quality of life for individuals and families living with EB.