About DEBRA:
For people whose skin doesn’t work – we do.

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.

DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group.

Our vision:
We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB.

DEBRA focuses its work in two areas:
We fund pioneering research to find effective treatments and, ultimately, a cure for EB.
We provide care and support to improve the quality of life for individuals and families living with EB.